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NIB News: April 2013

CONTENTS:



Award Winning Journal!

Narrative Inquiry in Bioethics: A Journal of Qualitative Research received the Honorable Mention (2nd place) for Best New Journal of 2012 in Science, Technology, and Medicine from the PROSE Awards.

The PROSE Awards annually recognize the very best in professional and scholarly publishing by bringing attention to distinguished books, journals, and electronic content in over 40 categories. Peer publishers, librarians, and medical professionals have judged the PROSE Awards since 1976.

We are sincerely grateful for all the people who have helped make this journal a success!



Narrative Inquiry in Bioethics Volume 2 is available in print and on Project MUSE

Narrative Inquiry in Bioethics Volume 2 Issue 1 Symposium:Living Organ Donation” edited by Elisa J Gordon, PhD, MPH. Living organ donors share their stories about the experience—the good, the bad, and the surprising. These poignant stories share the importance of all people involved in the organ donation process. This issue is currently free on Project MUSE.
 
The two Commentary Articles in this issue are “Gifts and Obligations: The Living Donor as Storyteller” by Paul Root Wolpe and “Experiences of the Live Organ Donor: Lessons Learned Pave the Future” by Dianne Lapointe Rudow.

The Research Article is “Investigating a Rural Immersion Experience in Medical Education Utilizing Narrative Inquiry” by C. Cory Smith.

This issue also debuts our first Narrative Education Report, “Healing the Physician’s Story: A Case Study in Narrative Medicine and End–of–Life Care” by Lorie A. Roscoe.


Narrative Inquiry in Bioethics Volume 2 Issue 2 Symposium:Delivering Health Care in Severely Resource-Constrained Settings”  edited by Paul Farmer, MD, PhD and Sadath Sayeed, MD, JD. These stories come from doctors working all over the world to bring health care to those in need. Many of the authors are physicians from North America or Europe who devote part of their practice of medicine to settings of poverty and a few are working in the societies where they were born.

This symposium also contains Commentary Articles are “Striving To Do Good: Well-Springs, Realities, and Paradoxes of Medical Humanitarian Work” by Renee C. Fox and "To make a difference: Narrative Desire in Global Medicine” by Byron J. Good and Mary–Jo DelVecchio Good.

The Research Article for this issue is “Do Physicians Disclose Uncertainty When Discussing Prognosis in Grave Critical Illness?” by Rachel A. Schuster, Seo Yeon Hong, Robert Arnold and Douglas B. White.

The Case Study by David M. Belde is “The Efficacy of Ethics Discernment in the Organizational Context: The Case of Post–Offer Nicotine Screening.”


Narrative Inquiry in Bioethics Volume 2 Issue 3 Symposium:Parenting Children with Autism Spectrum Disorders During the Transition to Adulthood” edited by Kelly Dineen, JD, RN and Margaret Bultas, PhD, RN, CPNP-PC. Parents share the joys, sorrows, struggles and continuing needs of their children and families during and after this transition period.

Commentary Articles for this symposium are: “Yet Life Keeps Coming” by Particia Romanowski Bashe; “Resilience and the Narrtives of Parents of Adults with Autism Spectrum Disorders” by nabil Hassan El–Ghoroury; “Parenting Adults with ASD: Lessons for Researchers and Clinicians” by Cassandra R. Newsom, Amy S. Weitlauf, Cora M. Taylor, and Zachary E. Warren; “Growing Up with Autism: Challenges and Opportunities of Parenting Young Adult Children with Autism Spectrum Disorders” by Kayhan Parsi and Nanette Elster.

The Research Article for NIB 2.3 is “Paediatric Physician–Researches: Coping with Tensions in Dual Accountability” by Katherine Boydell, Randi Zlotnik Shaul, Lori D’Agincourt–Canning, Michael Da Silva, Christy Simpson, Christine D. Czoli, Natalie Rashkovan, Celine C. Kim, Alex V. Levin, and Rayfel Schneider.

Can We Talk About Sex?” is this issue’s Case Study, written by Mindy B. Statter.


Narrative Inquiry in Bioethics is available on Project MUSE

If you do not have access to Project MUSE, please consider asking your librarian to order Narrative Inquiry in Bioethics. Download a request form.



Narrative Inquiry in Bioethics Forum News!

The Forum hosts a spirited discussion between Jeffrey Spike, Ph.D. and James L. Bernat, M.D. on what should be considered “Reasonable Accommodation” for Families of ‘Brain Dead’ Patients”.

Readers will also find a piece by Jocelyn Streid entitled, “On Touch” – this piece discusses the importance of touch in health care and draws out how Certified Nursing Assistants are the caregivers that most often get to heal with touch. Jocelyn points out that, “modern medical practice tends to isolate physical touch to less-glorified members of the healthcare team, forgetting its significance and exemplifying a larger societal shift away from manual work.”

Forum readers can also find a thoughtful book review written by E. Ann Jeschke, M.T.S. of The Brewsters (Jeffrey P. Spike, Thomas R. Cole, and Richard Buday), which according to Jeschke allows the authors to, “expose their readers to the nitty-gritty of health care professionalism, clinical ethics, and research ethics through a choose your adventure format. The novelty of The Brewsters lies not so much in the format, as in the way the book introduces theoretical concepts by encouraging readers to enter the complexity of the ethical decision making process and experience the consequences.”

To see these and all the other interesting piece visit the forum site.




Calls for Articles

NIB is always looking for informative Case Studies, Qualitative or Mixed Method Research Article or Narrative Education Reports. Please see author guidelines (sections 2, 3, and 4) for more information.



Calls for Stories

Narrative Inquiry in Bioethics currently seeks stories for several upcoming narrative symposia. Click on the links to read a full description of the call. Please forward these calls to your friends! We have found many potential authors need a personal invitation before they feel comfortable sharing their stories. The quality of our narrative symposia depends entirely on our ability to recruit great stories from people who are open to sharing their experiences.
   
Living with the Label ‘Disability’” edited by Jeffery Bishop, MD, PhD and Naomi Sunderland, PhD.

Confronting Pediatric Brain Tumors: Parent Stories” edited by Christy A. Rentmeester, PhD and Gigi McMillan.

We are currently working on calls for other issues so please watch our JHUP site for new calls.



Watch for Our First Issue of 2013 (NIB 3.1)

Taking Bioethics Personally” edited by Tod Chambers, PhD. This symposium shares stories from professional bioethicist about how illness, their own or that of a loved one, changes the way they “do” ethics. With commentary articles from Arthur W. Frank, Bradley Lewis, and Carol Taylor.



Coming in Fall of 2013

The Many Faces of Moral Distress Among Clinicians” edited by Cynda Hulton Rushton, PhD, RN, F.A.A.N. and Renee Boss, MD, MHS. The focus of this inquiry is on the personal and professional impact of moral distress and the ways that clinicians find meaning from that distress. Stories come from: nurses, physicians, clinical ethicists, professionals in training, and others.
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